I'm still making progress!!! I've continued to do new things each week. After 3.5 years of being sick and over 2 years almost completely bed bound, I'm like a kid in a candy shop! Everything seems so new and exciting. All the old 'chores' of the past don't seem like chores at all. I've got a big goofy grin on my face just walking into the store with David to pick up some glue. Why? Because I just WALKED into the store! If you have followed any of my blog in the past 2 years, you will remember that I only dreamed of walking into a store again and actually getting to maneuver around on my own feet. I truly believed I would never, ever again do that without a wheelchair. BUT THEN............
I've had a few days where I have been pretty ill, but they haven't endured very long. I'm learning to be able to finally compartmentalize which dizziness is which. That has been epic for me. Knowing which kind is the get to the floor fast vs the vertiginous kind has made a world of difference. I'm now working with a new doctor who is trying to help me with the horrible vertigo from my chronic migraines that have added to the 'headache' (pun intended). We were able to find out the enormous amount of foods I'm actually allergic to and begin the research phase again. If the doctor can help me find these hidden triggers, it will immensely aid in my ability to rehab and improve as the dizziness continuously sets me back week after week. My heart hasn't enjoyed all of this activity, to say the least. My cardiologist will aid in this adventure in the next few weeks. Since there are not many people like me, it's very hard to find a proper cardiac rehab program to aid someone who cannot sit in a simple chair but can walk a mile! I also return to Mayo Clinic next month to continue the research stage of my chronically low plasma, gastroparesis, and unexplained hypoperfusion, and rare dysautonomia. However, I'm hoping to WALK right into that office on my own feet by that point. Wish me luck!
During the last few weeks I've been so busy with LIFE. I'm still homeschooling our youngest (which is more difficult this year). It's been a challenge to have to sit and work with her for 4-5 hours when I truly want to be up and about. I have to quickly remind myself something about where I'm laying my treasures. (Still a work in progress). I've also been cooking up a storm. This was one of my greatest passions before I became ill. I loved to prepare a meal from scratch and serve it cheerfully every evening. It's been so good to get back in the kitchen. We've all missed my cooking!!!!! I've also been enjoying the sunshine. It feels so good to have the wind in my hair and sun on my face as I'm walking or biking in the neighborhood. The most fun of all is getting to do normal things like walk into a store, pick out my own groceries, or decide which item I WANT. This has been so freeing!
My husband and I are scared to open our eyes and discover this is all one big dream. We've had this happen before (3 years ago), and we are both terrified of it all slipping away again. However, we are working VERY HARD not to concentrate on that but enjoy every minute! There are so many wonderful moments , even in the midst of a few dizzy days here and there. I've never had so much fun doing dishes in all my life!
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