Well, one week and constant, non-stop, back to back appointments just were not enough! We gotta add another week. While that is not ideal for anyone.....(aka: me)....the doctors are looking in another direction to see if they can't find something that will help my current, permanent supine position.
Doctors have made some headway with my son, and we'll finish out his tests and appointments by this Friday. He will have to stay with me and be my wheelchair chauffeur for the week. My husband will return next Friday for the final consultations and hope and pray they have some new kind of treatment plan (right now it's more like 50-50)
For now, we are beyond exhausted! We are all very tired and worn out. However, we are getting all the necessary tests DONE!
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