School has come to an end, all activities have ceased, and the official start to summer has begun. Summer has begun without our usual sigh of relief. We all know this means we must now come back into our reality that we so neatly tucked away during the stress and excitement of all spring had to offer.
We leave in the next few days for our trip to Mayo Clinic. My son will undergo his first ever round of grueling, autonomic testing. I will have to put myself through hell once again doing the same tests I've had over and over again for the ever so slight chance that something could point them in a new direction of treatment.
We haven't done much talking about the tests or what it all means. We've kept it pretty much baseline. We have talked about how much fun we will try to have in the evenings and on our down time. (We rarely get to be all together away from the stress of our lives and my illness) However, from experience, Mayo doesn't give you very much down time especially when there are 2 of you seeing teams of doctors and having quite a few tests scheduled.
We should know before we leave if they have come up with any new ideas for myself or what course of action they will take with my son's treatment. Emotions will be running high, but if the past is my guide, we will be all focused on our schedules, the tests at hand, shopping and restaurants, and my son's birthday. Yes, my oldest son will turn 15 while we are at Mayo Clinic. In fact, some of his toughest tests are actually on his birthday. He's being a real trooper about it all! But then again, he always is!
I thank everyone who has been flooding us with encouragement during the last few weeks. We are not overly optimistic, but we are holding on to the fact that this 'sliver' of hope exists! We covet your thoughts and prayers during the next 10+ days!
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